Tuesday, June 28, 2011

summer begins

Oops, did not mean to fall off the face of the planet for 2 weeks. It's been a busy, busy time and I got sick (again) with a sinus infection that traveled downward and settled in my throat, rendering me voiceless over the weekend.

Around here school starts after Labor Day and doesn't finish up until the end of June, so we've only just begun our summer vacation.


It seems like Kindergarten just started and now it's over! My big girl, on to first grade...


It's only been 4 days but school seems so far away already. Daughter is signed up for crafts and stories at the library, and also lego club which I have to admit sounds like fun. I don't mind paying taxes when these free activities are available to my kids. AJ isn't getting signed up for a specific activity this summer because he still has speech therapy several days each week and I have nowhere for Daughter to go if I'm busy with her brother. So we'll wait till fall.


I say that, but I don't know what the coming school year will bring. We're in the throes of transitioning from Early Intervention to our school district for AJ's speech services, and that means evaluations and testing and reports about our baby boy...which I know are all necessary to get him the help he needs, but it's a horrible process to endure from a mother's perspective. I have to sit there and calmly, quietly watch him be tested, all the while wanting to "translate" his speech because often I do know what he is saying, but the tester has no idea. Thankfully he scored right on target for his age cognitively, meaning he does not qualify for special education (which we pretty much knew), but the speech problem...well, it's pretty severe.


No one knows exactly what is wrong with my kid. As our ENT told me yesterday, he is one-of-a-kind, an interesting case. And you don't really want to be "interesting" in the medical world. Doctors like interesting cases. They want to poke your kid and see what happens. All along I've been hoping and praying things would even out and become easier; that he would succeed and prove that he's really just fine. Now we've been referred to cranio-facial specialists to further investigate the apparent weaknesses in AJ's palette, facial muscles, and eyes.



It all leaves me feeling frazzled and knotted up and confused. I want and need to do what is best for my son (and for my daughter, of course), but it is sometimes hard to know what that is when you're dealing with so many medical disciplines.

So if I disappear for a few days or weeks at a time, it's likely because I just can't sort my thoughts out in a coherent fashion. Through it all there's the endless laundry, the cooking and cleaning, the piles of sand tracked into the house that need sweeping, the potty training and cleaning up of accidents, the bills to be paid, the groceries to shop for, and of course the summer family fun to be had.

Back soon.

3 comments:

Louise said...

You're dealing with a lot! Your kids do seem to be having fun, though, so that's a credit to you. Happy summer-ing.

Karen said...

that is a lot to sort through. wish I could give you a hug and then have coffee and talk through it.

kate said...

Thanks girls. One foot in front of the other, right? :)