Thursday, November 05, 2009

big step

I've been writing crafty posts lately, but I need to interject a personal one.

Today my son ate almost 200 calories BY MOUTH at lunchtime. Then he made the sign for "all done." And I wept with happiness over both.

That doesn't sound like a big deal, probably, but when you consider that each of his 4 tube feedings per day is 237 calories, it is HUGE.

It means we can safely cut out several ounces of Pediasure given through the tube., which will encourage his hunger and reduce tube dependency.

I met with our totally amazing, awesome nutritionist yesterday and she gave me lots of ideas for fat-filled but healthy foods to substitute for tube calories, if he will eat them. Right now it's a lot of baby cereal made with whole milk, and 2nd foods puree with oil in it to boost the fat and calories, but I am thrilled with whatever he will eat by mouth at this point. He is also finding cheerios and rice krispies to be acceptable, and happily shovels them into his mouth by himself.

I am cautiously optimistic.


Karen said...

Oh wow, Kate!!! That is a huge step! How wonderful!!!!

Ruth said...

YAAAAAAAAAAAAAAAAY!!!!!!! Hooray for AJ!!!!! This is the best news I've had all week. Happy dancing for you all over here!!

Mrs Lemon said...

Awesome! So excited - he is catching on fast!

Shari said...

Wonderful news!

Pam said...

AWESOME!!!! With the holidays coming on, I wonder what he would think of pumpkin or sweet potato pie filling? Lots of calories there:)