I've been writing crafty posts lately, but I need to interject a personal one.
Today my son ate almost 200 calories BY MOUTH at lunchtime. Then he made the sign for "all done." And I wept with happiness over both.
That doesn't sound like a big deal, probably, but when you consider that each of his 4 tube feedings per day is 237 calories, it is HUGE.
It means we can safely cut out several ounces of Pediasure given through the tube., which will encourage his hunger and reduce tube dependency.
I met with our totally amazing, awesome nutritionist yesterday and she gave me lots of ideas for fat-filled but healthy foods to substitute for tube calories, if he will eat them. Right now it's a lot of baby cereal made with whole milk, and 2nd foods puree with oil in it to boost the fat and calories, but I am thrilled with whatever he will eat by mouth at this point. He is also finding cheerios and rice krispies to be acceptable, and happily shovels them into his mouth by himself.
I am cautiously optimistic.