Where shall I begin? How about 3 a.m.-ish? Ok, here we go:
2:40 a.m. - wake to alarm because child sleeps through the night (thank God for that blessing)
3:00 a.m. - bring warmed bottle of fortified breast milk upstairs, feed to sleeping child.
3:15 a.m. - collapse back into bed.
6:20 a.m. - wake to alarm again. Go downstairs, pump bottles of milk, warm prepared bottle.
7:00 a.m. - feed prepared bottle to still-sleeping child. Collapse back into bed for a few more precious moments of rest, or grab shower if we have appointments that day.
7:20 a.m. or so - get back up to change horribly stinky poopy diaper, generated as direct result of 7:00 feeding.
7:30 - unplug monitor from outlet, throw that and the suction machine over shoulder, grab some clean clothes for the child, grab child, make way downstairs.
7:30-8:00 - perform morning cares for smaller child (clean g-tube site, change gauze, dispense eyedrops), change poop #2, dress child.
*8:00-9:30 - wrangle Daughter through breakfast, potty and dressing. Attempt to eat something as well.
9:30-10:00* - pump and mix bottles
*If this is an appointment day, wrangle Daughter much faster, throw still-damp hair into a shitty-looking ponytail, pack up wee child's machines and diaper bag, and throw everyone in the car...while desperately trying to avoid the use of 4-letter words. Arrive late to appointment, sit and wait anyway, get through 30 second appointment, head home.
11:00 - attempt bottle or breast-feeding, then finish with g-tube feeding.
11:30-12:30 - attempt to feed Daughter something healthy for lunch
1:00 - pump and mix bottles
1:30 - read stories and drop-kick Daughter into her bed for nap
1:40 - end of naptime - attempt to do some laundry, make the bed, eat something, pay bills, or heaven forbid...relax for two seconds.
3:00 - feed baby, cuddle, play, spend quality time
3:30 - wrangle Daughter onto the toilet for post-nap pee, have snack, hang out playing go-fish, candyland, playdough, or coloring while still trying to do some laundry and/or finish (my) lunch.
4:30 - pump and mix bottles
5:00 -7:00 - work on dinner, attempt to calm fussy baby, eat something.
7:30 - pump and mix bottles
8:00 - chuck Daughter in tub or wrestle her into pajamas.
8:30 - read stories and bodyslam Daughter into bed.
9:00-10:30 - hang with baby, try not to fall asleep, perhaps knit one or two rows if baby is sleeping.
10:30 - pump and mix bottles
10:50 - change baby for bed, warm bottle, take baby and all equipment upstairs.
11:00 - place baby in bed, administer final feeding of the day.
11:20 - collapse into bed.
I must add that we are currently living with my parents in their large home so that I will have help with just about all of the above while Hubs goes to work. Our house is going on the market, and there is no way I could leave for showings in this situation.
A child with special needs is a handful, even when those special needs are not extremely complicated.
Life is a tad overwhelming just now.